Wednesday, June 4, 2014

11 Months

Hi Friends and Family, 

Pasted below is an email my Dad sent to our family a couple days ago. It's been a long, crazy, strenuous 11 months, but we're so very grateful for all the good news we've received lately - and for all the hope we have for a great future together. 

Here's a picture of the old guy. He's been walking every morning to help build up his endurance and strength. (Nice red pants, Dad.) ;)

Love to all, 

Jamie

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Family,

Yup, it has been 11 months to the day, 6-2, since I was diagnosed with pancreatic cancer and I am writing you all to tell you that I am still getting the very best of care from doctors, as well family.

Last Friday I did an extensive blood work up. The following morning, Dr Weaver called with the results and until I get the printout suffice it to say he wanted us to hear the good news that all my levels are in great shape!


Then yesterday, Monday the 2nd (anniversary 11 months ago) I went for a CT scan, and at 5:36 Dr Mandell called to say that she had good news - "basically there is nothing bad." The tiny things in the lungs that were a concern remain the same and we feel it is normal old scar tissue and unrelated to the cancer!!!!! The tumor markers had been at 17.75 but were down to 12.9 - all good trending and safe levels. So it seems that doctors like to give good news and I am blessed to have them in my life.


I will be going to Dr. Hague on the 12th for a eye to eye evaluation from him regarding the CT, and I doubt that there is anything different he will tell us, but we are looking forward to his prognosis.


As always, I am the most blessed guy you all know and am blessed to have you all in my life.


So looking forward to more contact with all of you soon!


All my love,


Dad

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Tuesday, March 11, 2014

Great News!

The following post was written by my dear sweet Mom:

SCARY WEEK!
We were really looking forward to last Wednesday because it was going to be Bruce's last day of radiation but, after his treatment on Tuesday we met with his doctor who was quite surprised at how poorly he looked and felt. As it turns out, his blood pressure was very low and he was dehydrated, among other things. Fortunately, he has a port so they were able to hook him up and give him two liters of fluid which made him feel better but, because he was in a weakened state the doctor felt like there may be something wrong with his liver so she ordered a ct scan and blood workup. We sat on pins and needles waiting for the results (which we would find out the following Monday) and wondering with fearful anticipation.

GOOD RESULTS!
It's hard to describe the relief we felt when Dr. Mandell told us that his ct scan was good and his labs looked great. It has been a long, long road (nine months) to get to this point. Surgery-done! Chemotherapy-done! Radiation-done! The doctors will forevermore need to keep an eye on Bruce but for now, get some strength back and GAIN SOME WEIGHT PLEASE!

THANK YOU!
Everyone has been so supportive and caring. We can't imagine going through something as intense as this without the love of family and friends. Our children have been an amazing source of strength to us. They have gone above and beyond so, we want to publicly express our appreciation and say, 'WE LOVE YOU SO MUCH!' Also, we know that we have received the blessing of 'life' from our Heavenly Father. It would be an understatement to say that we have been incredibly stirred to our core by this blessing and in all humility publicly thank Him.

To the staff, thank you for always greeting me with warmth!

It's a tradition to ring the bell when you finish your radiation treatments.
Ring a ding!

Thank you Dr. Mandell! We think the world of you!
This wonderful group of people helped make my radiation experience the best that it could be!

With love and thanks to all, Bruce and Jeanie


Thursday, January 30, 2014

Pink and Purses





Dr. Sue A. Mandell, Medical Director Radiation Oncologist, is Dads new doctor. My parents "absolutely love her!" They feel she is knowledgeable but knows how to explain things in layman's terms. Also, she is happy to answer all of my Dads questions. Dr . Mandell (or like my Dad likes to call her Mandella) had him pegged the first visit. She said "You are a Type A personality that has a lot of questions, and I'm willing to answer them all."

Dad will have 28 total radiation treatments, 3 down, 25 to go. In addition to that he will have chemo pumped into his chest 24/7 hence the black shoulder strap chemo bag which holds the machine.
My Mom really liked this picture of my Dad with his pink shirt and purse. Do with that what you will.

On a personal note - I read this essay in the NYT this last week, about a young man having cancer and his thoughts on how long he has left. I know a lot of us have family and friends who have dealt with similar feelings and situations.

We love you all.

Wednesday, January 15, 2014

We received great news today!

1st of all--GOOD NEWS-- I GET TO GO TO THE NEXT LEVEL OF TREATMENT AND GET RADIATION/CHEMO!!!! The meeting with Dr Haque was very good and encouraging--there seems to be no advanced lymph's, nodules or juvenile (my words) tumors in the CT scan comparatives--Great News! There were some nodules that showed up on the scan, but they existed prior, and in the words of the Radiation Dr. "if we scanned my lungs I have some--everyone does"--so that is more good news--Also, the existing nodules are really small--largest is 3 mm. We walked down the hall to the Radiation Clinic and met Dr. Sue Mandell--(I call her Mandella) she is a straight shooter and both of us really liked her-- She, after the dust settled, was very very encouraged with my current health, weight (I am currently up to 160 lbs from a low of 148), and elements of treatment so far--she confirmed that the CT scan looked good and advised us that the treatment regime is going to be 5 and 1/2 weeks and not 8 weeks--(made my day) but this still will not be a walk in the park-- They are going to deliver 50.4 grey at a rate of 1.8 grey per day--that info was for Jordan-- I will start as soon as the 27th or as late as the 3rd-- The Doc is working up a mapping and virtual configuration to induce the radiation. She is also going to try to do a delivery system called I.M.R.T.--Intensity Modulated Radiation Therapy--a more precise delivery (a step in the direction of proton) which would lessen the chance of scaring and other adverse side affects/collateral damage...so we like that idea too. She was frank about the 50/50 chance that I will be diabetic after these treatments----However, 50/50 odds have served me well to this point-- At the end of the 5 1/2 weeks we repeat the CT and blood to check the cancer markers and see if there are any issues--if none then I go into a monitor schedule of every 3 months CT and blood ---this is as good of news as we could ever ask for --even the fact that I "GET TO GO THRU RAD/CHEMO" On a parting note with Dr. H--I confirmed that we are still going for "cure" --and he said yes very distinctly CURE!!! I also asked him how many pancreatic patients he was now treating and he said 5-6 and I asked how I compared---he said that all the others were metastasized and on that note we all realized just how UNBELIEVABLY BLESSED I HAVE BEEN-- So--bottom line--I can take anything for 5 1/2 weeks--with prayer and love from ya'll-- I can't thank you all adequately enough for the love that Jeanie and I have felt-- All my love, Bruce (Pops)
*Picture from Christmas with Jamie and Jordan who were able to visit!*

Tuesday, December 24, 2013

Saturday, December 21, 2013

Pizza! Pizza!

Jamie here. I'm sitting in the kitchen with my dad in a postprandial coma. Yes, that means the Brucie is eating well, feeling full, and gaining weight like a champ. Since the last post, he has seen several improvements. He's been actively working and driving, but is still hesitant to be in contact with too many people at a time due to his low immune system. Thanksgiving marked an important milestone, when he was able to partake of every dish on the table! He's now looking forward to the same satisfaction with the upcoming Christmas dinner.

Dad will be starting his 6th series of chemo on Dec.26th. A cat scan is scheduled to happen around January 13th, which will give us a good idea about if the chemo has been successful. Following the cat scan, he will begin his 7th and final chemo series combined with radiation for 6 straight weeks, for 5 days a week. Unfortunately, he won't be able to receive this treatment from home and will be making daily trips up to the Tri-Ciites. This should be completed by the end of February.

He's starting to make plans, some of them include a day hike up to Camp Muir on Mt. Rainier on July 4th and a family reunion with all of his kids and grand-kids on the Oregon coast in late summer. Having fun plans on the calendar are good incentives, and fun to look forward to for all of us.

Brucie is up to 156 lbs (thank you, mama Ricks for your amazing cooking). His latest obsession is cheap, cheese, carb-loaded pizza from Safeway. 3 pizzas for 10 bucks. Can't beat a deal like that, if that's what you're cravin'. His energy is up. He would tell you he's the "healthiest chemo patient you'll ever meet." (and the most blessed).

With Christmas a couple days away, my husband Jordan and I are so very grateful to be able to spend this time with my mom and dad. He's leaps and bounds better than he was a few months ago. It makes this daughter's heart happy. So very happy. In the spirit of Christmas, and on behalf on both of my parents, thank you for your gifts of faith, love and prayer.

Stay tuned  - the next post will include our annual Christmas family video. Prepare yourselves for some amazing lip-sinking and dance moves that might haunt you in your sleep.

Love to all and Merry, Merry Christmas!

Jamie

Thursday, November 21, 2013

November Update



Brandon, Sloane and I were able to go to Washington a couple of weeks ago and spend some much needed time together. Sloane and Dad still seem to have similarities... gradually adding new foods into their diets and seeing if there's any reaction.

Dad starts his fifth round of chemo on November 26th! He receives the treatments on Thursdays and then tries to rest over the weekend and is typically able to go into the office Monday-Wednesday for a couple of hours. Although his weight is low, he's been able to maintain it so that's a huge plus. 

My parents are having some issues with insurance and treatment options which can be a frustrating process but they are working through all of it.

They want to say thank you for the love and support and also ask for prayers at this time especially for the upcoming PET scan.